Start your own Herpes Association

The Business Plan

Creating an identity

Fundraising

Project Management

A successful working model - The New Zealand Herpes Foundation

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The Business Plan

One of the critical success factors in developing a patient organisation is the need for funds. In order to apply for funds from relevant sources, such as pharmaceutical companies, research companies or philanthropic organisations, you will need to present a business plan. The IHA can provide a template to assist you to complete a business plan. You will also find to examples of successful business plan models at the bottom of this section.

What should you include in your business plan?

1. Executive Summary – this defines where your group is now, what your mission is and how you intend to achieve it.

2. Rationale – what is the current situation in your country, for example: how common is the infection; Is it a psychological burden; what is the level of knowledge; is there adequate care.

3. The Charter – what is your mission statement, what are your goals, and who is your audience.

4. The Structure – what is your current structure.

5. Stakeholders – who are your internal and external customers, for example:internal may include your sponsor, and health or medical organisation that you are aligned to; and external may be the general public, people with herpes, patient groups, government funders, healthcare providers etc.

6. Patient Support and Advocacy Groups – this may detail the types of groups already established in your country, where they are placed and what support is currently available.

7. SWOT Analysis – what are the strengths, weaknesses, opportunities and threats that exist in your country to assist or prevent you succeeding.

8. Key Issues – for example: what do you need in order to be an effective robust organisation; do you have a sponsor, and to what level of funding; what partnerships do you have with patients/medical/health professionals; what level of information is available and how easy is it to access; and what is the patient/public awareness and attitude to genital herpes.

9. Objectives – What are you trying to achieve.

10. Strategies – How will you achieve them (this is a detailed breakdown of the objectives)

11. Tactics – Who will do each task, and by what date. All of the proposed activities will need to have a costing put alongside them, so as to ascertain budget requirements for funding assistance.

Business plan template

Successful Business Plan Models

New Zealand Herpes Foundation Business Plan 2001
International Herpes Alliance Business Plan

Creating an Identity

Selecting a Name
Choose a name that is easily identifiable with what you are offering. Using “herpes” in the title is a good idea. Here are some examples of names of herpes organisations and groups that are already being used:

Australian Herpes Association

New Zealand Herpes Foundation

Association Herpes

Registering as a Company
Organising your activities and services under the “umbrella” of a company will help you to create your own distinct identity. By establishing a company, your organisation also becomes more official and credible. If you want to seek charitable or not-for-profit status later on, it may be necessary in your country to be an official company or “incorporated” body.

The process of establishing a new company varies greatly from country to country and it is best to seek legal advice. Here are the key questions to consider when deciding whether to become an official company:

- do I definitely need to be a company to become a charity or can I become a trust or another type of officially recognised organisation?
- what are the tax advantages and disadvantages of being a company?
- will I need to employ an accountant to prepare an annual set of accounts?
- will it therefore be expensive to maintain an official company?

If you decide to create a new company you will need to work with a lawyer who can prepare the necessary legal paperwork. Again, each country has different laws and regulations for this process. Normally, you will find that the lawyer will draw up a contract of incorporation. The contract will outline what needs to be put into place; for example, you are likely to be asked to appoint “officers” of the corporation. These are usually three or more people who will be responsible for making decisions about how the company will operate and are often given titles such as chair, treasurer and secretary.

Registering as a Not-for-Profit Organisation
There are many benefits of registering your organisation as a charity or not-for-profit organisation:

- you will become eligible to apply for charitable grants from foundations, governments and other sources
- you will be eligible for certain tax benefits – these vary from country to country but normally allow you to accept donations without paying tax
- you may find special charity rates are available for a host of activities such as advertising and registrations for conferences and exhibitions
- being an official charity tends to give you greater credibility when communicating with others such as potential sponsors, the media etc.

The process of establishing charitable status varies greatly around the world. Some countries, like the UK and France, have a central registration body so this is the first point of contact. Its staff will be able to advise you on the necessary steps. If you are unsure of where to start, contact your local bureau of commerce.


Fundraising

Effective fundraising is an essential part of your survival, without funds you cannot exist.

Defining What Funds You Need
The first step is to establish what funds you need to run your organisation on a day to day basis. This includes overheads such as telephones, heating, electricity, salaries, and rent. These are sometimes grouped together under the heading “core funding”. You will then need to define funding for each proposed activity and project.

Developing a Fundraising Policy
Developing a fundraising policy or strategy can help you focus your fundraising efforts. This policy should take into consideration any ethical or other issues held by your group or organisation. Develop a document containing the following information:

- why you require funding (see above)
- what specific funds are needed to cover each activity and the core funds
- what you aim to achieve
- how you intend to implement the activities
- the timeline
- fundraising packages

Fundraising packages can take two forms:

Corporate sponsorship packages can be structured into varying levels depending on what funds are available. These may be Bronze, Silver and Gold or 1 star, 2 star and 3 star sponsorships.

Project packages are used to secure funding for a specific activity or project such as an event, campaign or for the development of material.

Potential Funding Sources
Financial support can come from a number of sources and it’s a good idea to try and secure income from a broad base.

- Governments or their health departments may have health promotion funds to which you can apply for funding. In Europe there are European Union funds – look on the Internet for more information on these.
- Industry/commercial companies tend to put their budgets together during September/October for the next calendar year. Bear this in mind when you make any approach to commercial companies.
- Health Foundations exist for the sole purpose of making grants but you will need to be a registered charity to apply.
- Individuals may make donations either one-off or regularly. In some countries there are mechanisms for money to be deducted at source from working donors (sometimes known as payroll giving).

Develop a priority list and collect information on potential funders. Match their interests with your own. Agree your method of application, determine the right contact person and start building relationships.

Look at timing for submission of your proposals. Applications for Government grants are often reviewed on an annual basis, so find out when your application should be in.

How to Approach Sources for Funds

Companies, foundations and governments all normally require a written proposal providing details of your organisation and project. Some will have application forms to be completed. For a standard funding proposal the following information will be required:

- details about your organisation, including the need it meets
- numbers of any members/size of audience you expect to reach
- amount of money being asked for
- what the money will be covering
- what you intend to achieve
- time scales.

Principles of a Funding Partnership

When you agree funding always develop a written agreement/contract defining what is and what is not acceptable by both parties. This agreement should include:

- a description of the relationship
- amount of funding agreed
- purpose of the grant/funds
- expectations
- evaluation criteria.

There should be no strings attached to finance and no expectations that products or services are endorsed. Whoever your funding comes from, a basic principle is to keep them informed of your progress.

Self Fundraising Mechanisms

Look at ideas on how you can generate your own funds, such as:

- membership fees
- registration fees for seminars and other events
- sale of literature and other materials.

Project Management

Once you know what funds are available you need to plan activities that you feel best fulfil your objectives. Having an activity plan in place will help you to schedule and implement your activities more efficiently and effectively. This is all part of good project management.

Employing a Project Manager
Although you may be able to enlist support from volunteers to help initiate activities, critical to the long-term success of any initiative is the appointment of an experienced, paid project manager. This is not a voluntary position, and it is not a position that we would recommend is suitable for a person with herpes.

Why employ a Project Manager?
- Provides a safety net between people with herpes, sponsor and medical/health professionals
- provides an independent person to communicate and liaise with all stakeholders
- ensures the objectives of the project are met
- translates the goals into realised projects, through integrating the needs of people with herpes, medical/health professionals and sponsors.

If you are setting up a herpes resource organisation this will involve a considerable amount of time and work. It should be your goal to identify and seek funding for a paid Project Manager who will be responsible for the day-to-day running of the organisation. The Project Manager will also be responsible for scheduling and overseeing all the activities of the group. Below you will find a job description for a Project Manager, detailing the ideal skills required for this position. If your organisation is still getting off the ground, a part-time person may suffice in the interim.

Project Manager Job Description


Click here to down load an example Project Manager job description

A successful working model - The New Zealand Herpes Foundation

To view a presentation created by the NZHF, which details their activities since being established, please scroll down to the bottom part of the downloadable PDF of this section.