Genital herpes still carries a social stigma

Social stigma of genital herpes is real, measurable and harmful. A concerted effort needs to be taken to change perceptions of the condition and to empower patients with positive messages. These are the findings of a Herpes Stigma Colloquium recently organised by the American Social Health Association (ASHA).

The continuing stigmatisation of herpes was highlighted back in 2002, when a group of researchers set out to recruit young women for a herpes vaccine study. Uptake proved to be so difficult that the researchers organised a series of focus groups to uncover the reasons for this reluctance to participate. 'Social stigma' was one of the most prominent concerns mentioned, and potential recruits stated that they did not want others to find out that they were involved in something related to herpes.

In an attempt to understand more about public perceptions of herpes, ASHA convened a group of 30 experts, including behavioural scientists, clinicians, patient advocates and marketing professionals. Dr Carmen Radecki Breitkopf, University of Texas, defined stigma as an attribute or condition that devalues an individual and sets them apart from others in a negative way. Dr Dennis Fortenberry, University of Indiana, argued that stigma of genital herpes is real, measurable and harmful, since it can discourage people from being screened for the condition or from talking about it if they have already been diagnosed.

A number of suggestions were made as to how the social stigma of genital herpes can be reversed. In the media, every attempt should be made to avoid associating herpes with the concept of promiscuity ,and, where possible, positive spokespeople should be put forward. Healthcare providers should be better trained in discussing sexual health and in counselling patients. Finally, patients should be empowered with positive messages. Materials should stress the fact that herpes is treatable and manageable.

Source

American Social Health Association Herpes Stigma Colloquium, Research Triangle Park, NC